Sadie's Remicade visit yesterday went okay. She had the large dose of predispose first and then started the new larger dose of Remicade. Sadie was a bit emotional yesterday and very weepy. This is not like her at all so it was hard to understand what was going on. She spent quite a bit of time in my lap curled up. This was the first time we have done this medication in the morning rather then the afternoon. The biggest difference is we are use to coming home and eating dinner then heading to bed. On Remicade days she is always a bit more tired, but doing the Remicade first thing in the morning revealed how long this "tired" feeling lasts. Sadie was pretty much dragging all day and was very frustrated that she was feeling so out. Her legs were a bit weak and she had an awful stomach ache. She ended up going to bed with that stomach ache and therefore I am not waking her for school this morning. I hope that by the time she wakes up she will be feeling better.
On Tuesday, September 12th we (Sadie, Bill and I) attended the Jingle Bell Captain Kick-off event held at the Seattle Space Needle. I had the honor of being able to share our story. I am trying to find a way to post the speech I gave on this site, but having a hard time. I hope that I will be able to do this soon.
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