Sadie's blood work came back from the latest Lymes testing and it actually did the opposite of what it should have done to confirm Lymes. There could be legitimate reasons for this (being the Remicade could be suppressing her system to have the tests read negative) which is what we think happened, or she could not have Lyme. The issue now is... she is doing so well, what do we do. So, at this point we added one more supplement and we are going to keep on the protocol. We will monitor her very closely and we will consider retesting in a few months (probably after the surgery). Whatever is going on with her, I know that she is doing better than she has in a long time. What I don't know is... what is causing that. She was taken off a Arava, could be that. She is taking a ton of supplements, could be that. The high dose antibiotic, could be that. The Remicade dosage increase, could be that OR it could be a combination of all of the above. We are really not interested in testing a system that is working. Now, that said, Sadie has her Labs drawn on Monday during Remicade and IF her liver function test comes back high, we will re-evaluate are feelings on this.
In other news... Sadie's surgery has once again been rescheduled; this time due to the doc being out of the country. So, now she will have the surgery on November 13th. This really isn't that big of a deal, but you would be amazed at the circle of phone calls this creates... from the surgeons office, to the rhuemy office, to the Remicade scheduler, to the teachers and staff. It seems like yesterday the phone was attached to me. Sadie will be seeing a Physical Medicine doctor next week; this doctor can help get the ankle ready for surgery; they have several things they do to help in the cell rejuvenation process to help healing easier.
She starts her weekly pool therapy the third week in the month and then we see Dr. W (rhuemy again). No break in appointments, but at least I feel like we are able to report at least a little more positive information lately.
God Bless,
Theresa
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