Been a long time since I updated. The broken leg doc has released Sadie from his care - this is one less thing to deal with - YEAH!
Sadie did end up getting fitted for a new brace, the new brace came, it looks and feels good. The brace did not fit in her current shoes, so she got new shoes, which meant a new lift (and $100.00 later) she has cool new shoes! Thank the Lord for Nordstroms and there willingness to allow split sizes!
Sadie's last Remicade went well, we were moved to another part of the hospital and that was a bit confusing and the routine changed a bit, which made us both a little anxious, but it worked out just fine.
Days after Remicade Sadie was diagnosed with hand foot mouth which is just mostly and inconvenience, I am happy to report this chapter is over too.
PT had a good look at Sadie and the good news is that Sadie's motion in her right ankle has not decreased since the break. The left ankle on the other hand is a bit of a mess, but this is somewhat expected. So, we have home exersize and PT will become part of the plan again.
This weekend is KAT (Kids and Teens) camp for kids with Arthritis; this was a huge door for our family last year and launched our ability as a family not only except that Arthritis is part of our lives, but help us open up, share, learn, support and fight this ugly thing. We are all excited about this weekend.
Upcoming: Sadie has Remicade again this Thursday and then has an appt with her Rheumatologist on the 28th along with more PT. On the 28th we will find out if she will continue to go to Remicade every 4wks or try and stretch that out. Then a week later - back to school!!!
Jingle Bell information will start flying out soon - PLEASE email me if you are interested in joining my email list as a potential team member or if you would be interested in donating this year. Our goal $5,500.00!
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