I know it has been a long time since our last update. We (the family) have been very, very busy. It is hard to find anytime to sit down and update more or less sort out thoughts. We did a sort story for a local news station here which you can see at:
http://www.king5.com/health/children/stories//NW_050507HEKjuvarthritisSW.3d481da0.html
I am not sure how long that link will be good for, but hopefully a little while.
Sadie seems to be quite swollen and in a lot of pain once again. Mostly the ankle. Dr. Wallace has put Sadie back to every 4 weeks for Remicade and started oral steriods again. We are on week three of that right now and it has helped, but not as much as it has in the past. It is hard for me to know what is arthritis and what is damage in that joint although the swelling makes me think it is the arthritis. Her hips and neck have been bothering her on and off too. On the other hand she has not slowed down at all. She is still swimming twice a week and doing pool therapy and still continuing to take in each and every sunny day like a kid, playing!
Please just keep her in your prayers, we appreciate everyone who prayers for her physical and mental well being, but I also ask that you pray for her spiritual being too as it can be hard to really feel strong when you are fighting pain.
I hope to update sooner than later, again, thank you for the notes and thoughts!
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