Lots of new stuff in this last week and more to come I am sure. Yesterday we (our family and doctors) decided that the best thing for Sadie right now is to take her off most of her medications. No more prednisone (steriod) and no more Remicade. Her doctor wanted her to stay on the Methotrexate as she feels it would be too much on her body to just stop it all at one time, but then when I got home I had a message asking that she stop the methotrexate for two weeks (for other reasons). So at this point Sadie will be on anti-inflammatories only. She has a blood draw yesterday as there are other signs that she might have some type of infection so they want to see her labs, they just came back (as I type) and all is normal - this is a huge relief. Next week she will have an MRI to see how much arthritis is active, where it is and how much damage has been done. This will help Dr. Wallace understand the best way to move forward.
We don't know what this will look like for Sadie to be off all the medications, I can only ask that we have prayers for MERCRY and for HEALING.
Team Sadie's Stars is just mind blowing so far this year. We have already raised over $1,600.00 and it is on the first week in October. Sadie's pediatricians office has joined our team this year and are putting together and amazing benefit event in Everett. Jimmy Z's in Everett will be hosting the event and so far they have arranged a very, very special band to perform. I am amazed by the giving that people are showing in support of Sadie and in support of the Arthritis Foundation!
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